Starting your Autistic discovery journey – a guide

Find on this page key videos, topics, and links to resources for when you start your Autistic discovery journey, starting with the basics of “what is Autistic experience?”, under the first heading “Starting your Autistic discovery journey“, further down the page.

Once you’ve started (or finished!) you are welcome to head over to the back catalogue (and growing weekly!) of Aucademy videos for other and more in-depth discussions about experiences connected to being Autistic, including:

  • ADHD/interest-based nervous system/polyennic/polyennism 
  • PDA/anxiety-driven need for autonomy
  • Situational mutism/”selective” mutism
  • The intersectionality of being neurodivergent and queer/LGBTQIA+
  • Substance use and addiction
  • Mental health topics, and what therapy works
  • Navigating therapies, the UK mental health system; and avoiding “interventions” like ABA/behavioural approaches that harm
  • Hyper-empathy
  • Exposure anxiety
  • Importance of animals for Autistic people
  • EHCP support in the UK
  • Autistics and employment
  • Neurodivergent relationships
  • Importance of gaming
  • Why Autistic people have “all the things” – e.g., co-occurs
  • And so much more

Checklists

Unofficial Autistic checklist

Written by Samantha Craft, this scored checklist version is based on Samantha’s original blog found here. Below you can download the scored version created by Dr Chloe Farahar. This checklist, whilst unofficial, is more appropriate and useful for those with masked Autistic experience, and those who do not feel they fit the male stereotype of autism depicted in the official checklists.

Unofficial autism checklist here

“Official” checklists

  • The Aspie Quiz (136 items, and provides a circular spectrum of your answers, and a percentage of how neurodivergent and how neurotypical you might be, as well as stating the likelihood that you are Autistic. Note: uses the term “Aspie” instead of Autistic, and implies you can be both neurodivergent AND neurotypical, which you cannot).
  • And/or the Autism Spectrum Quotient (50 items, providing a score at the end, and the likelihood of being Autistic).

Please note that both the official tests are biased toward the concept of “male autism”, and created by non-autistics, and so ask questions more about externally observable behaviour than internal states (the latter is more common for Autistics with a tendency toward an internal phenotype, which includes women, non-binary, trans persons, and men).

Remember that none of these checklists are a substitute for professional assessment, and they also do not determine whether you are Autistic or not – only your feelings and experiences can truly determine that you are Autistic. 

Many of us are multiply neurodivergent, e.g., some people are also polyennic (have an interest-based nervous system/”ADHD”), so it might be useful to also do checklists for “ADHD”, with the same caveats as above about the medicalisation of polyennism:


Starting your Autistic discovery journey:

ONE: Aucademy bitesize: Autistic basics: What is “autism” & what is Autistic experience?

TWO: Aucademy bitesize: Autistic basics: The Autistic spectrum, really

THREE: Aucademy bitesize: Autistic basics: The language of Autistic culture: Identity-first language

FOUR: Aucademy bitesize: Autistic basics: Functioning language, subtyping, & myths

Also, see here a blog supplying you with: Resources supporting preference, but importantly wellbeing properties, of identity-first language: we are Autistic


Six common reactions during Autistic discovery – the journey.

Find a blog about the six common reactions during Autistic discovery here: https://aucademy.co.uk/2022/01/20/six-common-reactions-during-autistic-discovery/


ALT TEXT: Image of different colour thought bubbles, each with different reactions, feelings, experiences of Autistic discovery, the writing reads:

"6 common reactions during the Autistic discovery journey"

Denial: imposter syndrome; I don’t do *that* thing, the diagnosis/discovery is wrong
Embracing: having confidence in your Autistic identity, and connecting to the culture and community in Autistic spaces: allowing yourself to be authentically you
Depression: or is it Autistic burnout? masking/shielding is exhausting; taking control of your mask/shield)
Bargaining: Fine, I’m “high functioning”; I'm only a "bit Autistic"
Acceptance: OK, I *am* Autistic – but receiving mixed responses from other people when I disclose
Anger: re-evaluating life and events; anger at the injustice of being invalidated for Autistic behaviours and experiences; perhaps angry at the "autism")

The model was created by Autistic people to help other Autistic people feel heard and validated that whatever thoughts and feelings they have about discovering they’re Autistic, others have experienced them too. All reactions, responses, thoughts, feelings, & stages when you discover you’re Autistic are valid. Keep in mind these reactions are not linear, & you may experience one, many, all of them, or none, & at different times, or experience them simultaneously (for more information please use the link below). Let us know where are on your journey and what had helped you in your discovery.

Farahar, C. (2021). Six common reactions during Autistic discovery. https://bit.ly/3sbhvRb . ALT TEXT ENDS
Downloadable poster of the six common reactions of Autistic discovery.

Video discussion about the six common reactions during Autistic discovery below:

Video discussion about The six common reactions of Autistic discovery: The journey: Chloe & Annette educating Aucademy 19.02.2022

Explaining Autistic experience: Theories about Autistic experience

Note that the video below – What is autism?: “autism” versus Autistic theories: Tanya Adkin & Aucademy’s Chloe 07.08.2021 – is 2 hours 45 minutes long, as we pick apart many of the existing theories. There are also shorter explainer videos in our blog Theories about Autistic experience.

What *is* autism?: “autism” versus Autistic theories: Tanya Adkin & Aucademy’s Chloe 07.08.2021

Explaining Autistic experience: Monotropism: Fergus & Tanya educate Aucademy

Autistic empathy: Double empathy Aucademy special: Damian, Bobbi, Kieran, Annette, Rachel, & Chloe

The Autistic communication hypothesis: Rachel Cullen educates Annette & Chloe of Aucademy

Farahar Foster three dimension Autistic space

What is Neurodiversity?

Explaining Autistic experience to people:

Explaining Autistic experience to young people: Sam Story with Tigger, then Dr Melanie Heyworth

Disclosing one’s Autistic identity, Annette Foster, with Chloe & Jessica: Aucademy in discussion

Autistic discovery stories:

Discovering an Autistic identity following becoming a parent: Aucademy in discussion with Kieran

Four Autistic women and their Autistic journey

The politics of being Autistic in a non-autistic world:

Why we should be fighting *prejudice* toward Autistic people, not “autism stigma”: Chloe educates

A rose by any other name would smell…of stigma (or, the psychologically important difference between being a “person with autism” or an Autistic person)

Masking

Autistic masking REALLY: Kieran Rose educates Aucademy’s Chloe 29.05.2021

Anxieties

Aucademy Autistic Anxiety Discussion

Importance of sensory and stimming

Autistic sensory, stimming, & relaxation techniques: Annette & Monique educate Aucademy

Autistic sensory trauma: Emma Reardon educates Aucademy’s Chloe

Autistic mental health and Autistic burnout

Young Autistic people’s mental health, & burnout: Jodie Smitten educates Aucademy

Young Autistic people’s mental health, & burnout: Jodie and Mel educate Aucademy 22.07.2021

Dedicated interests – not “special interests”

The importance of interests for Autistic people & their wellbeing: Anna educates Chloe & Tigger

Autistic journeys; acceptance; and pride

Rebuilding my life after receiving my diagnosis: Autistic writer Daryl educates Chloe and Annette

An Autistic journey, before & after diagnosis: Wayne & Andria educate Aucademy

Autistic Pride at Aucademy – 2021

Autistic Joy on Aucademy: 23.04.2022

You are welcome to head over to the back catalogue of Aucademy videos for other and more in-depth discussions about experiences connected to being Autistic, including:

  • ADHD/interest-based nervous system/polyennic/polyennism 
  • PDA/anxiety-driven need for autonomy
  • Situational mutism/”selective” mutism
  • The intersectionality of being neurodivergent and queer/LGBTQIA+
  • Substance use and addiction
  • Mental health topics, and what therapy works
  • Navigating therapies, the UK mental health system; and avoiding “interventions” like ABA/behavioural approaches that harm
  • Hyper-empathy
  • Exposure anxiety
  • Importance of animals for Autistic people
  • EHCP support in the UK
  • Autistics and employment
  • Neurodivergent relationships
  • Importance of gaming
  • Why Autistic people have “all the things” – e.g., co-occurs
  • And so much more