Trailer: The Doctor, the Poet, & the Reverend. Tom Delahunt talks about his ADHD life and his search for neurodivergent people to share space with. Due to be released Wed 3rd Dec 2025

The full, 2 hour interview special released NOW! on our YouTube channel, 14:00, Wednesday the 3rd of December, 2025!

Video out now! https://youtu.be/dAtUmtRun_8

And find a written call-and-response piece between Tom and Chloe, here https://aucademy.co.uk/2025/11/19/sharing-the-canopy/

Original trailer:

What are the outcomes for the Autism Act 2009 review, held 2025?

Aucademy’s Dr Chloe Farahar was invited to a closed session to contribute to the Autism Act 2009 review, held between April and June 2025 – and we wrote about what their session discussed, here, and the more detailed Westminster meeting notes and questions asked can be found here.

In this blog, we summarise what the 254 page report of the review sessions found.

Time to Deliver: Making the Autism Act Work for Autistic People

November 2025 | The Aucademy Team

The Verdict: Progress Without Purpose

A landmark House of Lords report has delivered a powerful verdict on sixteen years of autism policy in England. The message is clear: whilst awareness has grown, outcomes for Autistic people have not improved. It’s time for genuine transformation, not just tweaks around the edges.

When the Autism Act was passed in 2009, Autistic people were largely invisible to services. We fell through gaps between mental health and learning disability provision. The Act changed that – or at least, it was supposed to. The Select Committee’s findings tell a different story.

Simply put, the system isn’t working. Over 172,000 people are waiting for autism assessment, with many facing delays of two years or more. The NICE guideline says thirteen weeks. The reality? Some people wait five years. And when they finally get that diagnosis, post-diagnostic support is virtually non-existent. As one witness told the Committee: “You get your diagnosis and fall off a cliff.”

What Actually Matters: Beyond Awareness

The report exposes a fundamental problem with how autism is approached in public services. We’ve moved from invisibility to awareness, but awareness without acceptance is meaningless. Autistic people still face a 20-year life expectancy gap. Eight in ten experience mental health issues. Only three in ten are in employment. These aren’t just statistics – they represent lives constrained by systemic failures.

The Committee heard powerful testimony from Autistic people and those who support them. The message was consistent: public spaces remain inaccessible, healthcare is often traumatic, education excludes rather than includes, and support arrives only at crisis point. One particularly striking finding? Autistic children are five times more likely to be excluded from school. This isn’t about “challenging behaviour” – it’s about environments that disable.

A New Strategy: From Crisis to Prevention

The current autism strategy (2021-26) set ambitious goals but, after its first year, successive governments produced no implementation plan or funding. The Committee demands better for the new strategy launching in July 2026.

Their vision is transformative: a shift from crisis-driven to preventative support, from diagnosis-dependent to needs-based provision, from segregation to genuine inclusion. Importantly, they insist that Autistic people must be meaningfully involved at every stage – not just consulted, but leading the change.

Key Changes That Matter

The Committee makes over 80 recommendations. Here are the ones that could genuinely transform Autistic people’s lives:

Public Understanding: A government-led campaign to improve understanding and acceptance, with mandatory training for all public-facing staff. Aiming to move from “autism awareness” to creating accessible environments and challenging damaging misconceptions.

Healthcare Revolution: Digital flags in patient records, hospital passports, and mandatory Oliver McGowan training. The goal? Making reasonable adjustments standard practice, not special favours. The Committee also demands action on the shocking statistic that Autistic people die 20 years younger than non-autistic people.

Education Transformation: An end to off-rolling and illegal exclusions, whole-school approaches to inclusion, and accountability measures with teeth. Schools must become places where neurodiversity is valued, not punished.

Employment Support: A specialist jobs service, expanded supported employment, and incentives for employers to make genuine adjustments. The economic case is clear: every pound invested in employment support returns four pounds to the economy.

Community Support: Investment in preventative, stepped support that keeps people out of crisis. The Committee found that crisis-driven approaches cost more in both money and lives. Early intervention isn’t just humane, it’s economically essential.

Making This Information Accessible

At Aucademy, we believe information about Autistic people should be accessible to Autistic people. That’s why we’ve created two summary versions of this important report:

• Standard Summary: A comprehensive two-page overview covering key findings, recommendations, and implementation requirements. Perfect for professionals, advocates, and anyone wanting detailed insights.

• Easy Read Summary: An accessible version using clear language, visual symbols, and simple tables. Designed specifically for people with a learning disability and/or Autistic people who prefer information presented simply and clearly.

Please share them widely – this information belongs to our community.

What Now? From Report to Reality

Reports don’t change lives – action does. The Committee has provided the evidence, the framework, and the mandate. Now it’s up to all of us to demand implementation.

For Autistic people and our allies, this report is validation and ammunition. It confirms what we’ve been saying for years: the problem isn’t autism, it’s the disabling environments and systems we navigate. Use this report in your advocacy, your complaints, your campaigns for change.

For professionals, this report is both challenge and opportunity. It demands we move beyond awareness to genuine culture change. It requires us to centre Autistic voices, not just consult them. And it insists we stop treating reasonable adjustments as optional extras.

The Time is Now

The report’s title – “Time to Deliver” – captures the urgency. Sixteen years after the Autism Act, Autistic people are still fighting for basic rights and recognition. The Committee has thrown down the gauntlet to government, to services, to society.

As the report states: “Autistic people are as diverse as our country and represent an integral, valuable part of it.” It’s time that diversity was celebrated, that value was recognised, and that Autistic people could thrive, not just survive.

The new autism strategy launches in July 2026. Between now and then, we have a window to influence its development. The Committee has given us the evidence and the framework. Now we must ensure the government delivers genuine transformation, not more empty promises.

Because quite simply, Autistic people have waited long enough.

Access the Summaries

Download our accessible summaries of the House of Lords Select Committee report “Time to Deliver: The Autism Act 2009 and the new autism strategy” from the Aucademy website. Available in standard and easy-read formats.

Reference

Select Committee on the Autism Act 2009. (2025). Time to Deliver: The Autism Act 2009 and the new autism strategy (HL Paper 205). House of Lords.

About Aucademy CIC: Aucademy provides Autistic-led support, education, and advocacy. We believe in Autistic culture, community, and the power of lived experience to drive change.

Designing Sensory-Friendly Products: An Autistic Entrepreneur’s Journey 📚


Introduction

I’ve been autistic for 35 years—my entire life. For most of those years, I struggled with organisation, routines, and the overwhelming sensory chaos of everyday planning tools. Bright colours, cluttered layouts, flimsy materials that felt wrong in my hands. Nothing worked the way my brain needed it to.

So I built something that did. This is the story of how lived experience became a business, and why designing for autistic minds means designing differently.

The Problem with “Normal” Planners

Walk into any stationery shop, and you’ll find hundreds of planners. Complex layouts with multiple sections fighting for attention. For neurotypical people, these might be inspiring. For many autistic minds, they’re exhausting.

Here’s what I learned the hard way:

Sensory overload is real. Glossy paper that reflects light. Bright colours that demand attention. Thin, flimsy materials that feel insubstantial. These aren’t just preferences—they’re barriers. When a planner feels wrong in your hands or hurts your eyes to look at, you won’t use it. I didn’t.

Visual clutter kills focus. Many planners cram every page with decorative elements, multiple fonts, and competing information. For someone managing executive dysfunction, this creates decision paralysis before you’ve even started planning your day.

One size fits nobody. Neurotypical planners assume everyone thinks, plans, and processes information the same way. They don’t account for time blindness, routine rigidity, or the need for predictable structure.

Building a Business Through Autistic Burnout

Starting ROARGANISE wasn’t a smooth journey. I was navigating my own autistic burnout whilst trying to design products, manage suppliers, and learn e-commerce. There were days when answering a single email felt impossible, let alone running a business.

But burnout taught me something crucial: if I was going to create planning tools, they needed to reduce overwhelm, not add to it.

Every design decision came from lived experience:

  • Black and white colour schemes because my eyes needed rest, not stimulation
  • Soft-touch, waterproof vegan leather because texture matters when you’re holding something every day
  • Thicker paper (170gsm) because flimsy inserts felt temporary and unreliable
  • Clean, simple layouts because my brain needed clarity, not decoration
  • Customisable inserts because rigid systems don’t work for flexible autistic routines

I wasn’t designing for a market. I was designing for me—and for everyone like me who’d been failed by “normal” planners.

Why Sensory Considerations Matter

Sensory needs aren’t luxuries. They’re fundamental to whether a tool gets used or abandoned in a drawer.

When I chose waterproof materials, it wasn’t just about durability. It was about the tactile comfort of smooth, consistent texture. When I selected FSC-certified 170gsm paper, it was because the weight and feel communicated reliability.

Every sensory detail either supports or sabotages executive function. If a planner feels wrong, your brain spends energy managing discomfort instead of managing tasks. That’s not a personal failing—that’s a design failing.

What I’ve Learned About Serving Our Community

Three years into this journey, here’s what I wish I’d known sooner:

1. Autistic people know what they need. The most requested features—dated monthly calendars, food trackers, weight loss planners—came directly from customers. Listening to the community is the only way to truly serve it.

2. “Professional-looking” matters. Many customers use these organisers at work or in medical appointments. They needed something that looked polished and serious, not childish or overly decorative. Autism doesn’t look one way, and our tools shouldn’t either.

3. Planning tools can support diagnosis. I didn’t expect this, but many customers use the organisers to track symptoms, routines, and challenges to share with doctors during ADHD or autism assessments. Clear, structured documentation helps medical professionals see patterns quickly.

4. Sustainability aligns with autistic values. Many autistic people care deeply about environmental impact. Using FSC-certified paper and vegan materials wasn’t just ethical—it resonated with the community’s values.

Final Thoughts

Building ROARGANISE has been the hardest and most meaningful thing I’ve ever done. Every organiser I check before dispatch, every customer email I answer, every design decision I make—it all comes back to that autistic teenager who couldn’t find a planner that worked for her brain.

If you’re autistic and struggling with organisation, know this: it’s not you. It’s the tools. You don’t need to force yourself into systems designed for different brains. You need systems designed for yours.

And if you’re thinking about creating something for the autistic community, start with lived experience. Listen to autistic voices. Design for real needs, not assumptions.

Because when we design for autistic minds, we create tools that actually work.

About the Author: Lisa is an autistic entrepreneur and founder of ROARGANISE, a UK-based business creating sensory-friendly planning systems for neurodivergent individuals. With 35 years of lived autistic experience, she designs products that address executive dysfunction, sensory needs, and the unique challenges of neurodivergent organisation.

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From Postcode Lottery to Policy Change: Autistic Voices at Westminster

What Autistic People Say About NHS and Council Services

Parliament Asked. We Answered.

Dr Chloe Farahar of Aucademy CIC was invited as one of three Autistic experts to a private, closed meeting with the House of Lords Committee on the Autism Act 2009. The committee asked experts to share their views on how the Autism Act 2009 and national autism strategy have worked in practice, what hasn’t been effective, and what the government should prioritise next.

Find here the published notes of the meeting.


As this was a private committee session, the findings below reflect general themes discussed during the meeting and are not attributed to any individual participant. Here are the key points raised:

The Current Picture

Whilst some excellent services exist, there’s still a “postcode lottery” of support. Many NHS and council staff lack practical training on working with Autistic people, and when training is available, uptake can be limited by time and resource constraints.

Barriers to Good Care

Participants highlighted several ongoing challenges:

  • Long diagnostic waiting times (the NICE guideline of 13 weeks has never been consistently achieved)
  • Emergency services that don’t make adjustments for Autistic people’s needs
  • Professionals sometimes dismissing Autistic people’s understanding of their own bodies and needs
  • Particular barriers for Autistic people from ethnic minority backgrounds and LGBTQ+ communities

The Involvement Gap

Too often, decisions are made “about” rather than “with” Autistic people. Families report fighting for promised support that doesn’t materialise, and services don’t always listen when placements or treatments aren’t working.

However, there are positive examples where Autistic people have genuine power in service design and delivery, leading to better outcomes for everyone.

What Needs to Change

Experts called for:

  • Early support rather than crisis response
  • Needs-led support that doesn’t require a diagnosis
  • Real decision-making roles for Autistic people in permanent positions
  • Better training that goes beyond basic awareness to practical skills
  • Accountability for organisations that engage in tokenistic consultation

The Bottom Line

The Autism Act has raised awareness of duties to Autistic people, but implementation remains patchy. With some people spending decades in inappropriate hospital settings, and many struggling to access basic support, there’s an urgent need for properly funded, Autistic-led service transformation.

The Committee’s final recommendations could be crucial in shaping the next phase of autism policy beyond 2026.


Based on consultation with Autistic experts by experience, and experts with a learning disability/need facilitated by NDTi, May 2025

🚗 SEEKING AN ADMINISTRATIVE PARTNER ✨


Meet Hubert, a 43-year-old late-diagnosed Autistic person from West London who’s planning an incredible journey to raise Autistic understanding!

Hubert is preparing to drive a specially-prepared “Autistic” Land Rover all the way to Robben Island, South Africa – a powerful symbol of triumph over adversity.

Hubert’s mission:

✨ Challenge misconceptions about Autistic experience

✨ Highlight how vital Autistic people have been to human development

✨ Show the world our strength and importance to society

Hubert needs help with:

📋 Administration support

📢 Marketing & PR assistance

💰 Fundraising operations

🤝 Network connections

This is more than just a drive – it’s a journey to change the narrative around Autistic people and celebrate our community’s contributions to humanity.

Can you help make this happen? Get in touch or share to spread the word!

#AutismAwareness #AutisticPride #RobbenIsland #Advocacy #CommunitySupport #AutismAcceptance #Partnership #LookingForSupport

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De-centering the ‘male’ Autistic experience

By Katie Munday (they / them)

Historically, being Autistic was considered a male childhood experience, with boys more readily diagnosed than girls. This trend is still prevalent in many areas of autism research but thankfully the gap between male and female diagnosis and realisation is slowly closing. As is the access to diagnosis and realisation for transgender, non-binary and gender divergent individuals.

There have been many reasons why many girls and women have been overlooked for diagnosis including (but not limited to); systemic misogyny and transphobia, autism research which favours ‘male’ traits and cultural gender stereotypes.

Systemic misogyny and transphobia

Misogyny across medical systems, which upholds ideas of female ‘hysteria’ and over-emotionality, means women are more likely to be disbelieved or wrongly diagnosed with personality differences and mental health issues. These diagnosis can then cause access issues to Autistic identification.

Professionals are not seeing the very real connection between what would be considered ‘disorders’ (what I prefer to call embodied self-preservation) and Autistic experience, which often includes consistent trauma. So, even when females are diagnosed with personality differences they are often overlooked for also being Autistic.

Access to diagnosis is also difficult for transgender and gender divergent individuals who wish to transition medically. Often these people are left to choose between being supported with their Autistic diagnosis or gender affirmation, but very rarely are they given the opportunity for help with both. Unfortunately, Autistic people are still seen as children who do not understand gender and therefore are not ‘really’ transgender. This infantilsation denies Autistic people gender affirming healthcare and many forgo an autism diagnosis so they can get help with the more immediate need of living their authentic gender.

Many people turn up to gender identity health clinics because they are confused by their gender and need help untangling it all, some of us live in gender flux and fluidity and this confusion should never mean punishment. All gender experiences are relevant, and all people should have access to gender affirming and diagnostic healthcare, this means creating more support for people of colour, queer people, physically Disabled people and all other marginalised groups.

Autism research which favours ‘male’ traits

Across 70 years of autism research the most researched group of people have been young white males. This means that all criteria for diagnosis, and the supposed ‘support’ which comes with it, is based on ‘male’ behaviours. Anyone who does not present these traits are not considered Autistic and may be misdiagnosed with another form of neurological difference.

The very few Autistic people who fit the stereotype of Rain Main and Sheldon Cooper have the privilege of far fewer barriers to diagnosis. However, girls and women, transgender and non-binary folk and males who do not show these traits are often overlooked as we do not live up to the standard of male stereotyped Autistic traits.

This is further complicated for those of us who are people of colour, physically Disabled, Queer and trans because our social ‘difficulties’ are often understood as a common ‘impairment’ of our other marginalised identities. This is a glowing indictment of the racism, ableism and queerphobia within medical systems but also within places of education, work and anywhere else we are seen as being ‘problematic’ or ‘too much.’

These male stereotypes are based around white western ideals of behaviours; giving eye contact, staying still, keeping quiet, but ideas of ‘appropriate’ behaviour vary across different cultures. There are many indigenous cultures, for example, which deem eye contact as incredibly rude, but this is not accounted for in white western medicine.

Autism research has focused on male stereotypes for so long that the idea of a ‘female autism phenotype’ has arisen. Not only does this create even more barriers for those of us outside the binary but it also continues to other female Autists, favouring males as the ‘real’ Autistics. (I could, and probably will, write a piece on the ‘female phenotype’ but I lack the spoons to write about that particularly misogynistic, racist and transphobic idea at the moment).

Cultural gender stereotypes

Criteria for diagnosis, which favours males and is steeped in misogyny, are based on the undeniable inequality that all of us who aren’t cisgender male face.

Girls and women are often overlooked as Autistic as they often (strangely!) fit western female stereotypes. Many of them are either quiet: “she’s so shy!” or very talkative: “they’re quite the chatter box!” These vast differences in communication, confidence and the need to talk are both seen as inherently female: potential non-speaking or hyper-verbal traits are often considered as just a ‘girl thing’ and therefore often overlooked.

In many Western cultures, girls are kept young, virtuous and innocent for as long as possible. This can run parallel with the interests of Autistic people who often stay loyal to their hobbies for longer than their neurotypical peers. This is often misunderstood and pathologised as developmental regression but it is just the lack of fear we have about enjoying what we enjoy loudly and proudly!

Heteronormativity also plays a big part in gender stereotypes; girls are to grow into women who have children with a man and keep the household. Girls are explicitly and implicitly told that they are to grow up to be the main caregiver of children, do all the housework and most times squeeze in a full or part time job. Due to this many women are exhausted beyond measure; this is considered a cultural norm and does not consider neurological differences.

As we know, burnout between neurotypical people and Autistic people are vastly different, add in the overwhelming responsibilities placed upon women and we are sure to suffer poor mental health. Unfortunately, these cultural norms feed into misogynistic medical systems, which suggest that mums simply need to ‘rest more’ or pop a few Xanax and carry on exactly as they are. There never seems to be any understanding that this burnout is due to being Autistic, as well as living in a garbage heteronormative world. Less still can it be seen for what it often is: an Autistic person raising other Autistic young people in a world that is simply not made to support or enrich us at all.

So how can we de-centre the ‘male’ Autistic experience?

Firstly, challenging oppression benefits us all and this is in no way a fight against men and boys who also deserve diagnosis, support and acceptance. I want to create a world in which we can all reach understanding and support earlier in our lives.

Unfortunately, systemic misogyny and transphobia, focusing on ‘male’ traits and cultural gender stereotypes are all reciprocally determinant, they reinforce each other and are a difficult cycle to break.

Difficult, but not impossible.

Change won’t come overnight. It comes from the writings of brilliant Autistic academics and those of us who continue to put pressure on politicians and policy makers, the advocates and activists who show up every damn day to fight our oppression.

No contributions from any of us who stand up to oppression is small – we are all part of a bigger movement to change systemic ableism, racism, transphobia and bigotry. We can change things through our anger, through our writing, for showing up for one another, through social media, protests, pride events, Autistic run conferences, supporting Autistic artists, activists and writers.

These acts can and will invoke change so that the Autistic kids of tomorrow have more of a chance at Autistic joy, pride and acceptance.