“Oooh, shiny thing!”: Neurodivergent Voices in Education: The Unconventional Conference Experience Becoming Conventional?

“If the only thing you remember from me speaking today, is that Autistic experience is…oooh shiny thing! [picks something up from the conference floor]… there’s these weird shiny things on the floor, and they’ve been distracting me…what was I saying?”

GIF of Chloe being amusing/distracted!

This is what it can be like as a neurodivergent academic and trainer: distracted mid-sentence by shiny things on the conference floor! Luckily, it got a good laugh from the packed room of educators from across Kent and Medway, and I demonstrated that even adult neurodivergent people still get easily distracted!

But perhaps that’s exactly the point. In a room full of teaching professionals learning about neurodivergent pupils, what better way to illustrate authentic Autistic experience than by being authentically Autistic? The laughter wasn’t mocking – it was recognition, understanding, and a moment of genuine connection that no amount of PowerPoint slides could have achieved.

This happened at the July 2025 Autism Education Trust Kent: Mind & Body Conference in Maidstone, where I (Chloe), Ben, and Jessica from Aucademy CIC were invited to speak on topics related to the trust’s theme of Mind and Body: The experience of the neurodivergent pupil.


The Power of Neurodivergent Voices in Professional Spaces

There’s something uniquely powerful about neurodivergent people speaking to professionals about neurodivergent experiences. It’s not just about representation – though that matters enormously. It’s about the authenticity that comes from lived experience, the insights that can only emerge from having navigated the world with a neurotype that doesn’t match societal expectations.

As we sat at our speakers’ table near the front, largely all neurodivergent, I was struck by how different this felt from traditional academic conferences. We weren’t performing neurotypicality for the comfort of our audience. We were being ourselves – stimming, getting distracted, needing movement breaks, using our authentic communication styles – and in doing so, we were modelling what it actually looks like to be neurodivergent in professional spaces.


Autistic well-being: What works? – Dr Chloe Farahar

I spoke about the mental health, Autistic, and trauma needs Autistic pupils may be likely to experience, and importantly, the things that are most likely to improve our well-being, namely support to foster a positive Autistic identity, culture, community, and space.

Dr Chloe Farahar’s session outline

My Session Outline:

  1. Working definition of Autistic.
  2. What well-being concerns do Autistic people have?
  3. Why do typical therapies, e.g., CBT, not always work?
    • Challenges of using typical therapies, e.g., CBT, to improve Autistic wellbeing
  4. Therapists and their challenging behaviours.
    • Adapting CBT – does it work? Limitations of therapies and studies
  5. Neurodivergence in context – it’s relation to ACEs/trauma
    • Adaptations needed for neurodivergent people who have experienced ACEs/trauma
  6. Importance of Autistic identity, culture, community, and spaces for wellbeing
  7. Autistic profile building and boundary setting
Chloe presenting on Autistic well-being for young people in schools

Standing there, speaking to educators about why conventional approaches often fail Autistic young people, I found myself drawing on years of research but also decades of lived experience. The data tells us that Autistic people have significantly higher rates of mental health difficulties, but the lived experience tells us why: it’s not our “autism” that’s the problem, it’s a world that consistently tells us we’re wrong, broken, or need fixing.

While lots of Autistic people struggle with mental health concerns following adversity/ies, there’s evidence that our lives can be better when we are supported to foster a positive Autistic identity, culture, community, and space

While lots of Autistic people struggle with mental health concerns following adversity/ies, there’s evidence that our lives can be better when we are supported to foster a positive Autistic identity, culture, community, and space. This isn’t just academic theory – it’s what we see happening in real time when schools and families shift from trying to make Autistic young people appear less Autistic to supporting them to understand and embrace their neurotype.

The room was engaged, asking thoughtful questions about how to implement these approaches in their settings. But more than that, they were listening – really listening – to what we were saying about the importance of accepting and celebrating neurodivergent ways of being rather than trying to eliminate them.

Some feedback from AET attendees about what they took from Chloe’s session, what they will do differently, what they might want next, and their roles.

A World for Difference – Emma Kluibenschadl

We loved meeting Emma of STAK.life CIC (Stefan’s Acts of Kindness). We shared a speaker’s table near the front, and were largely all neurodivergent. It was a joy to be around other neurodivergent people, educating a room full of engaged education professionals from across Kent and Medway for the Autism Education Trust’s yearly conference.

Emma spoke about the amazing work that STAK.life CIC have been doing to make “A World for Difference” following the passing of their wonderful Autistic teenage son Stefan. Emma’s presentation was deeply moving, but also practically focused – showing how tragedy can be transformed into meaningful action that changes systems and saves lives.

There’s something profound about sitting alongside other neurodivergent speakers, each of us bringing our own experiences and expertise to the same goal: helping educators better understand and support neurodivergent young people. Emma’s work reminded us all why this matters so much – because every young person deserves to feel valued and supported for who they are, not punished for how their brain works.


Situational mutism, and the persistent drive for autonomy: Thinking about anxiety – Ben Usher-Barrass

Aucademy CIC are very proud of our Ben of Autisticality, who presented in person, with support from Jessica Chudasama-Alloway, for the first time on his experiences of situational mutism. Ben prepared an AI-cloned voice and slide show of his experience of anxiety-driven situational mutism, starting by introducing himself and slides with mouth words.

Ben presenting on situational mutism

Watching Ben navigate his presentation was a masterclass in accommodation and self-advocacy. He knew his limits, planned accordingly, and used technology to ensure his message could be heard even when his voice wasn’t available. This wasn’t a compromise or a lesser version of presenting – it was innovative and thoughtful, and ultimately more accessible.

When he came to sit back at our neurodivergent speakers’ table, he was visibly shaking from exposure anxiety and using his voice, but he was pleased that he did the presentation. The courage it took to share such personal experiences with a room full of strangers, especially when communication itself is a source of anxiety, cannot be overstated.

An attendee spoke through tears about how important it was for her to hear his experiences, as it helped her understand her young person better. This is the power of authentic neurodivergent voices in educational spaces – they create bridges of understanding that no amount of theoretical knowledge can match.


The PDA ExperienceJessica Chudasama-Alloway

Jessica spoke about their experience of PDA (Persistent Drive for Autonomy), bringing yet another dimension to our understanding of neurodivergent experiences. The diversity of our panel wasn’t accidental – it reflected the reality that neurodivergence isn’t a monolith, and that each neurodivergent person brings their own unique combination of traits, strengths, and support needs.

Jessica Chudasama-Alloway spoke about their experience of PDA

Jessica’s insights about the drive for autonomy and how it manifests in educational settings provided educators with practical strategies for supporting PDA pupils. But more than that, they offered a window into the internal experience of someone whose nervous system is constantly scanning for threats to their autonomy.


The Ripple Effect of Authentic Representation

What struck me most about this conference was how much the educators were interested in our authentic neurodivergent perspectives. They weren’t just politely listening – they were actively engaging, asking follow-up questions, and seeking ways to implement what they were learning in their own settings.

There’s something powerful about a room full of teaching professionals seeing neurodivergent people as experts in our own experiences rather than subjects to be studied or problems to be solved. It shifts the entire dynamic from “how do we manage these difficult behaviours?” to “how do we create environments where neurodivergent young people can thrive?”


Building on Success

Aucademy CIC have talked at two conferences now for Autism Education Trust, once in 2024 with Graysen and Chloe, talking about the diversity of Autistic experience, gender, and sexuality, and now Ben and Jessica on anxiety, mutism, and persistent drives for autonomy, and Chloe on Autistic well-being and what works.

Graysen and Chloe at the AET conference, Summer 2024

Each conference builds on the last, creating a growing network of educators who understand that neurodivergent young people don’t need to be fixed or cured – they need to be understood, supported, and celebrated. We appreciate the very neuro-affirming approach of the Trust, and hope to work with them again in the future.


The Unconventional Continues

As I picked up that shiny thing from the conference floor, I wasn’t just getting distracted – I was demonstrating that neurodivergent brains work differently, and that’s not a bug, it’s a feature. Our attention might be captured by unexpected things, but that same capacity for noticing details and making unexpected connections is what makes us valuable contributors to any team or classroom.

Educators left with new understanding, new strategies, and perhaps most importantly, new perspectives on what it means to be neurodivergent in educational settings.

And maybe that’s what unconventional academic and training work looks like – not following predetermined scripts, not pretending to be someone we’re not, but showing up authentically and trusting that our genuine selves have something valuable to offer.

After all, if we want educators to accept and celebrate neurodivergent young people, perhaps we need to start by accepting and celebrating neurodivergent educators and trainers too.

What Autism Education Trust Kent: Mind & Body Conference attendees had to say about Aucademy speakers’ sessions:

✨ Takeaways

  • Most feedback centred on stimming, identity, and new communication methods.
  • Over 60% of respondents are SENCOs, highlighting a need for whole-staff CPD on these themes.
  • Next step: design engaging CPD modules – complete with student voices, role-plays, and resource toolkits – to embed these insights in daily practice.
What three things have you learnt from your session?What, if anything, do you hope to do differently now that you have completed this training? How will your role benefit from the training?Any comments, observations, suggestions you would like to leave for Aucademy? Including any additional sessions you would find useful?
Autistic experience, learn their profileListen more attentivelyExcellent!
Different viewpoint, adapting environment, link of traumaCreate links between older and younger neurodivergent students 
What’s important for autisticImproved tutorial programme in our SRPThank you
Validate feelings, different forms of anxiety, what happened to you this week rather than how do you feel?Develop staff understanding and adapt my own practice in the classroom. 
Diff sensory experiences,  CBT not helpful for autistic people, stimmingConsider what we can change for wellbeing 
Trauma based training needed. Don’t stop stims. Collaborative opportunities for autistic studentsDon’t stop stimsTrauma training
Affirming what i believe inSupport my work as a play therapistLoved it x
Deeper knowledge of stimming, greater work on boundaries, and “What happened to you this week.”Genuinely, nothing!I can’t wait to steal you both to speak at my school!
Language we use, making autistic safe spaces, challenging staff to have a greater understandingTake things back to a whole staff CPDLoved the training thank you. I would like to read the chapter from your book
About finding a different way to communicate
Boundary setting
Difference between stim and harm
Plan for different communication methodsMasking and stimming
Neurodivergent burn out vs depression, that processing of sensory environment is why people react differently. We treat autism by teaching how to be autistic -!: Everybody’s weird, you just have to find your group of weird.N/A 
New terminology, how CBT doesn’t always work, helping people with ASC to share experiences with similar peoplemore talking and encouragement to be themselvesPossibly come and help some of our students
Importance of autism identity, seeing stems as soothing and supportive, teach how to be autisticI would like to adapt my practice to fully focus on identity and celebrating all amazing autistic abilitiesIt was fantastic
Listen to young people experience trying to fit in Neurotypical world.
Be Curious
Is it well – being or distress?
Understanding of YP experiences … not the same as mine.More more more
Hyperphantasia, aphantasia, processing is the differenceFeedback to school 
I loved the research element and young voices who were sharedI work in a SEN provision and I’d like to focus more on a pupil voice and young voice. I’d also like to focus on stimming and making sure that other adults allow them tooI would like to receive training in school. I would like to share information with my secondary school boys who i work closely with who are autistic.
1) masking is the quiet under the radar child… And also, the clown.
2) autistic Vs mental health
3) alternative way to ask ‘how are you feeling’ – I struggle with this question and enjoyed hearing alternative suggestion
Move out of education and into supporting young people in a different way.I’d welcome more training, more opportunities to learn and will watch the setting boundaries video.
Learn autistic profiles (either as an adult trying to support or as an autistic person about themselves)
Identity is very important – knowing yourself and also knowing others that have similar experiences
I found the clarification very helpful that sensory “difference” underpins the observed “differences” linked to being autistic
Find a way to help students to learn their autistic profiles in a large secondary schoolDr Chloe Farahar’s authentic advocacy of the autistic experience was both powerful and extremely informative to a non-autistic person.
1) How I can reword things better to make someone feel more comfortable
2) How exhausting masking is and what that would look like for a pupil
3) collecting more of pupils voice and how I can do that
As a very new to role (Pupil Support Manager) I want to be able to challenge and work with staff to better support the children in our care. And let them know it’s ok if they are not feeling like talking today or working today it’s about forming the connections/relationship with the pupil and the way we do things now that will progress dynamics in the future.Absolutely amazing content, I can only imagine how hard and demanding it is on all of you to provide us with such informative training and realist views.
It was very inspiring thank you

🚗 SEEKING AN ADMINISTRATIVE PARTNER ✨


Meet Hubert, a 43-year-old late-diagnosed Autistic person from West London who’s planning an incredible journey to raise Autistic understanding!

Hubert is preparing to drive a specially-prepared “Autistic” Land Rover all the way to Robben Island, South Africa – a powerful symbol of triumph over adversity.

Hubert’s mission:

✨ Challenge misconceptions about Autistic experience

✨ Highlight how vital Autistic people have been to human development

✨ Show the world our strength and importance to society

Hubert needs help with:

📋 Administration support

📢 Marketing & PR assistance

💰 Fundraising operations

🤝 Network connections

This is more than just a drive – it’s a journey to change the narrative around Autistic people and celebrate our community’s contributions to humanity.

Can you help make this happen? Get in touch or share to spread the word!

#AutismAwareness #AutisticPride #RobbenIsland #Advocacy #CommunitySupport #AutismAcceptance #Partnership #LookingForSupport

← Back

Thank you for your response. ✨

📚 AUDHD Art Book Project – Peer Reviewers Needed! 📚

📚 AUDHD Art Book Project – Peer Reviewers Needed! 📚

Artist Emily June Smith is seeking participants for a one-off focus group to review an early draft of their collaborative book about growing up Autistic/AUDHD.

What we’re looking for:

• Mix of people with and without lived experience of autism/ADHD

• Diverse backgrounds, ages, and genders welcome

• One recorded session to discuss the draft book

About the project: The book combines personal stories with educational content about neurodivergent experiences, including collaboration with non-verbal Autistic contributor Murray Bruce.

Why take part: Help shape an authentic resource that reflects the broad spectrum of Autistic and ADHD experiences.

Interested or know someone who might be? Please get in touch!

← Back

Thank you for your response. ✨

The unconventional academic – my post-doctoral journey comes to an end

“Your vibe isn’t of someone who works on Excel spreadsheets all the time.”

This was said to me by a friendly post-graduate student at the last academic conference of the Oxford-led ATTUNE project, on a sweltering day in London at the end of June 2025. A project where for five years, a large group of academics across the UK have worked with and for young people to explore their experiences of childhood adversity and mental health via creative arts.

Dr Chloe Farahar speaking at the ATTUNE conference in June 2025. Chloe on the train to London with disability assistant & partner, Stephen. Close-up of Chloe’s makeup that day.

At this conference, I spoke alongside fellow academics about what we found during the art workshops with young people of all sorts of backgrounds, from the youngest 12-year-olds up to 24-year-olds. I followed established academic Professor Nicola Shaughnessy – Nicki, and my boss to me – after she spoke about the importance of the arts as not merely art, but an integral and important form of “data” and science in itself.

Then it was my turn to speak to a few slides about the “dry” Excel spreadsheet that was the sum of years of work on framework analysis – a qualitative method that none of us had used before. This method allowed us to collect our young participants’ voices in a huge spreadsheet that could be “mapped” with any questions we had: “what did our young participants think constitutes adversity?” and “what experiences or factors that happen after adversity change whether young people have good or bad mental health later?”

As I stood there, I realised our carefully planned talk hadn’t gone to script. Nicki hadn’t spoken about her project journey – something she’d told us to think about, and which I had decided I would just “wing” on the day, with no notes ahead of time.

So, I joked to the crowd about how my notes weren’t needed, dumped my notebook on the table, and focused on holding the microphone whilst moving through the slides. Except, now my journey was on my mind, and I’d just mentioned it to the room, so I might as well talk to it first – sticking to the plan I’d had in my head…

Dr Sylvan Baker, the engaging keynote before our talk, had spoken of conventional academics working on young people and the power disparity in research with participants. As I listened, I must have looked disinterested or bored, scribbling notes in my notebook (which I’d remembered to bring for a change), I was thinking about my post-doctoral journey and how I was an unconventional academic in nearly all senses.

And so, as I stood there letting the audience of academics, students, schools, organisations, parents, and young people know that I was now going to speak to the “dry” data and Excel sheets (waits for laughs and titters), I thought about those notes anyway.

What unconventional looks like

I told everyone in that room how, listening to Dr Baker talk about conventional academics, I reflected on how I was an unconventional academic on an unconventional project. How this project had felt far more interdisciplinary than I imagine most projects that call themselves such – having as we did people from psychiatry, arts practitioners, and oddball neurodivergent social psychologists who have no idea where they fit in the world, let alone academia 👀.

I told that room that I am an unconventional academic because I am a psychologist who wrote a terrible play that I used for my PhD. I know it’s terrible because I don’t come from an arts background, and when my dear mentor Professor Shaughnessy read my play, she had lots of critique for it and its terribleness (loud laughter from the room, and a mortified Nicki).

I am an unconventional academic because I am innately neurodivergent.

I am innately combative and challenging for others to work with.

I have experienced childhood adversity myself, and I struggled at times to hear from the amazing young people on the project re-telling their adverse experiences.

I have pushed and been pushed by the nature of the project – but never by the amazing young people I met.  

These weren’t just personal characteristics I was listing – they were the very qualities that shaped how I approached this research. My lived experience meant I could sit with young people’s difficult stories in ways that felt authentic to them. My neurodivergence brought different ways of seeing patterns in the data. My combativeness meant I pushed back when traditional methods felt at odds with what we were trying to do.

The spreadsheets that aren’t dry

Then I spoke about the Excel spreadsheets and how they’re not dry at all – they are the voices and quotes of 74 young people with whom I did art with and who trusted me to be interviewed about their difficult life experiences. Each cell contained a fragment of someone’s story, their insight, their raw and real adversity, and strength and vulnerability.

It was back to Nicki then, to talk about how art and typical data collection methods create a “third space” – where art and science come together to create something far more than one method alone could achieve.

In the breaks throughout the day, something unusual happened. A number of students and established academics came to speak to me – something that doesn’t happen often, probably due to my Autistic neutral face that tells people “don’t approach me, I’m intimidating”.

They wanted to know more: to speak about the work we’d done and how I’d managed as a disabled person; advice on how to work with Autistic children; and could I come speak to Cambridge University in September, exactly how I’d done today – “humour and jokes and all”.

“What, even though Autistic people ‘aren’t supposed to have a sense of humour?!'”. Both laugh.

One PhD student wanted to know how we’d approached such difficult topics with our young participants without being too direct – I will send them our interview prompts for inspiration.

What comes next, uncertainty

I have no idea whether my hopes and plans for my next steps will happen, not least because I am struggling daily with extreme fatigue and worrying about pain from early-onset osteoarthritis. I have plans, but my body often has its own ideas about what we’re capable of. I even write this two days after the conference, absolutely exhausted from one day travelling to and from London to attend.

But perhaps that’s what unconventional academic life looks like – not following predetermined career paths, not fitting neatly into disciplinary boxes, not pretending that our whole selves don’t show up in our work.

Maybe the next chapter involves more conferences where I dump my notes dramatically and speak from the heart. Maybe it means finding new ways to bridge the gap between lived experience and academic knowledge. Maybe it means continuing to challenge what we think research should look like, sound like, feel like.

And so, I don’t have a vibe that tells you much about who I am, or what I am capable of. I have ideas, I have plans, and I will have to see what unconventional means of doing them I can push to happen – one unconventional day at a time.

But I’m beginning to think that’s exactly the kind of academic the world needs more of.

Dr Chloe Farahar (they/them – Autistic)


Neurodiversity! What’s that? An introduction to neurodiversity for kids

Book review by Katie Munday (they / them)

Beige background with a large rainbow infinity symbol. In each half is a child. Left is white child in a red dress with long brunette hair, they are holding a magnifying glass to one eye. Right is a brown child who is shrugging, their head surrounded by question marks. Text reads: Neurodiversity what's that? An introduction to neurodiversity for kids.
(Illustration by Victor Brave)

Written by Nadine Arthur, Neurodiversity! What’s That? is a fun, neurodiversity-affirming, educational book for children aged 8 plus.

Nadine Arthur is an Autistic parent and full time carer of her Autistic ADHD son. She grew tired of professionals telling her about her son’s numerous disorders and searched for children’s books which explained neurodiversity. After an unsuccessful search Nadine decided to write her own!

Through Neurodiversity! what’s that? Nadine introduces children to the neurodiversity paradigm (the idea that being neurodivergent is neutral but that many of us still need accommodations). The book promotes self-esteem and confidence for Autistic and otherwise neurodivergent children (including those who have dyslexia, irlens syndrome, dyscalculia and PDA).

Nadine takes difficult concepts and keywords used within the neurodiversity movement and makes them easily digestible for younger readers. One of my favourite pages was one in which the words disorder, syndrome, impairment and deficit are being thrown into different rubbish bins. The book is full of neurodiversity-affirming words and phrases including ‘there is no wrong type of brain’ and ‘differences need to be respected, accepted and celebrated.’

There is a glossary at the back for more advanced learners, and, despite talking about an overall preference for identity first language, there is a caveat that you should always ask people how they describe themselves.

Neurodiversity! What’s that? is full of positive messages which are useful for neurodivergent children and those they read with. The book allows children to understand themselves and others and how the world can only exist with different people and different neurologies. A must have for younger kids, neurodivergent and neuro-normative alike.

Living under the double rainbow: Trans and non-binary Autistic narratives

by Katie Munday (they / them)

Abstract / summary: Clinical impressions suggest a significant overlap of Autistic and transgender / non-binary identities. Most of this work focuses on prevalence rates and the perspectives of non-Autistic cisgender professionals and parent / carers, leaving the narratives of trans Autistic people overlooked. This study aimed to share trans Autistic narratives to contribute to knowledge around our lived experiences, as well as creating recommendations for future research in this area. This study represents findings from interviews with thirteen transgender and / or non-binary Autistic people (ages 20 to 50). Of interest was the way participant’s expressed their intersecting identities through narrative methods and what recommendations they would make for future research on transgender Autistic experiences. Participants spoke about a variety of life experiences including mental health issues, making and maintaining relationships, future aspirations and experiences with employment. Participants also gave recommendations for future work, including diversifying participant pools by ethnicity, age, physical disability and gender identity, as well as participatory approaches which include gender divergent Autistic people at all levels of study.

Read the rest of the article at Autistic and Living the Dream

Functioning burnout: can’t stop, won’t stop

By Katie Munday (they / them)

So many of us Autistic folk struggle with burnout – the extreme fatigue which comes from sensorial, emotional and mental overwhelm.

This can cause us to shutdown – some of us can be in bed for days or weeks on end, incapable of functioning at our usual level of activity, finding everything mentally taxing.

Many of us can’t afford to succumb to shutdown and her alluring siren call of isolation and inactivity. We have to surge through and somehow keep ourselves together.

This is especially difficult for those of us who have lots of responsibilities like raising young children and working full time. We just have to put our heads down and get on with it.

I have been in burnout for four months now, probably even longer. I am getting on with the day to day but I am well and truly overloaded, exhausted and floating around doing things purely by muscle memory.

I am struggling with basic self care, remembering to eat and drink, brushing my teeth, showering. It used to be that I was ashamed of all these struggles but now I just remind myself that it’s really hard to exist sometimes, so much so that the basics sometimes have to slip.

I know I’m not alone with my state of (barely) functioning burnout, so many of us are there right now, especially with the global pandemic, times of austerity and diminishing protections for Disabled folk. We are dazed, confused, exhausted by it all.

For others who are feeling this way: you’re not alone and you’re not broken. You are doing so amazingly well in a time and place which has been turned on its head.

We will come out of this phase, because that is all it is, a phase, and that means things will get better.

And for those of you who aren’t in burnout at the moment check in on your friends (even your non-Autistic ones!) because you never know when that might save someone from complete shutdown.

Autistic shields, Autistic communities

By Katie Munday (they / them)

I have spent most of my life creating and maintaining a shield for myself (see Autistic realisation and shielding). It allows me to protect myself from toxic neurotypicality – the insistent need for society to make everyone comply to the ideals of the neuro-majority.

The shields are protective, some of the time they are unconsciously created and sometimes they are more of a thoughtful struggle to maintain. Sometimes they are created alone and sometimes they are created together  – Autistic communities often make shared shields which protect and validate all of us lucky enough to be underneath them. In these safe spaces we can talk honestly and in a manner that suits us, we can stim, tic, behave and present ourselves in authentic ways. Community shielding isn’t just about making friends with others it’s about making friends with ourselves too, especially for those of us who have experienced trauma and those of us who are new to our Autistic realisation.

These shields allow us a space to explore our neurodivergent embodiment. The way we think, talk and fit into a world which is not set up to support or validate us. Shields are used in community building, they are safe places where we can come together, create and recreate ourselves, look after each other and challenge ideas of neuro-normativity.

Community and individual shields are cyclical, we need them to feel safe and joyful but the more we need and seek these, the more we need the shields. Shields aren’t always easy to create or maintain and they can become faulty during times of intense stress or burnout. They are a useful tool, but they can be exhausting to maintain. Creating shields with other Autistic people means we can share the load, allowing us to look after our mental health and stamina. 

This is particularly important during intense bouts of advocacy and activism – when one of us can no longer hold our part of the shield someone with more energy can take our place. We can replenish so that we can once more contribute through writing, speaking, protesting, sharing information and challenging policy makers. These shields are made up of all sorts of people with different experiences and skills, and we are all the better for it.

Autistic theories of Autistic experience

Find here explainer videos about the three Autistic-derived theories of Autistic experience: Monotropism theory (Dinah Murray), Double empathy problem (Damian Milton), and Autistic language hypothesis (Rachel Cullen):

Monotropism explainer video by Kieran Rose (The Autistic Advocate):


Double-empathy explainer video by Kieran Rose (The Autistic Advocate):


Reviewed by young people, double empathy explained:

Screenshot of the webpage from Frontiers for Young Minds: “Double Empathy: Why Autistic People Are Often Misunderstood”

Aucademy discussion on the double empathy problem from theory (Damian Milton), to evidence it occurs, to evidence of why it occurs (Rachel Cullen):


Aucademy discussion on the Autistic language hypothesis with Aucademy’s Rachel Cullen, educating Chloe and Annette:


Aucademy discussion explaining the monotropism theory with Fergus Murray & Tanya Adkin educating Aucademy’s Chloe and Ben:

Autistic realisation and shielding

By Katie Munday (They / them)

Since my Autistic realisation, I have been able to make more sense of how I fit into the world. I can now make more sense of strange experiences and interactions in my childhood, teens and early twenties: what it seemed to others that I had done wrong, subtext I completely missed and things I was supposed to be interested in.  

I spent 25 years not knowing what was going on, in a flux of confusion and high empathy but also low interest and nonchalance. I was alone but very rarely felt lonely, it was only when I mixed with others that I just didn’t get it. I wasn’t interested in others, I found their subtext frustrating, I just wanted them to be clear with me but when I was clear with others I was called arrogant, rude, blunt and harsh.

I’m at peace now as I finally know the truth – that I live in a completely different culture and world to most others around me and that is totally fine by me.

One of the things that struck me during my journey of Autistic realisation (I’m still on by the way) is that sometimes confusion also comes from other Autistic people and within wider Autistic communities. Some things for me just don’t fit, the idea of masking or camouflaging is a big one. I have been told indirectly many times that all Autistic people mask, especially if we are unrealised in childhood – we mask to fit in, to make life easier for ourselves and to survive in a world that isn’t built for us.

I find the word masking difficult because it suggests that I can play a part and hide away consciously with a fair amount of effectiveness, and that has never been my experience. I suppose I have been lucky, or maybe I just happened to be in unrealised heavily neurodivergent spaces, I believe my scout group was one of those spaces. I have always been very proudly weird from a family of other proudly different people. I was brought up to follow interests and passions which aligned with who I am as opposed to who I was supposed to be. That doesn’t mean life hasn’t been difficult and that I breeze through all social and sensory interactions flawlessly, far from it. It just means that my behaviour has never really been convincing anyone of anything other than what I am.

I don’t mask, I shield.

I have a force field, a membrane by which I can (usually) decide what comes in and out of my inner world, this shield protects me from the confusing bullshit of neurotypical people and allows me to work and live relatively happily within systems which are not built for me and my kind.

The word shielding conjures up images of sorcerers protecting themselves from incoming attack – and I think that is a near constant thing for Autistic people and our communities. It’s the subtle microaggressions we hear every day; ‘everyone’s a little Autistic’, ‘you don’t look Autistic’, ‘oh but you go to university!’. The patronising way that Autistic adults are treated like children and Autistic children are treated like burdens.

We shield to keep these awful things out as much as we can, but we also use shielding in a more positive manner. My shield, like a membrane, is two way, I decide who and what I allow into the inner sanctum and protect myself from the viciousness of the world. There is an immense amount of joy to be had within my shield; stimming, following interests, talking deeply about things and being truly unique.

When I get home, I can lower the shield, as my home and my family are my inner sanctum, there is just no need for the membrane at that point. Coming home and taking down the shield, is like taking your shoes (or your bra!) off, it is immediate comfort.

My shield is brilliant, but it’s taken a long time to build, and it still becomes faulty sometimes – it requires a lot of maintenance which I don’t always have the spoons to keep up. There’s an awful lot of toxic neurotypicality out there to shield myself from but also a great amount of Autistic joy and pride to keep safe.